The Treatment

We found out that the CDC knows virtually nothing about AFM (the first sentence on their “At A Glance” page states CDC is concerned about AFM, a serious illness that we do not know all the cause of or how to prevent.); we have never been more acutely aware of how far medicine still has…

The Hospital Stay

As it was already past 7:00 the evening we were admitted to the hospital, we suspected we’d be staying at least one more night as well. We weren’t exactly wrong – we were admitted Wednesday, August 31, and didn’t leave until Sunday, September 4. From what I’ve read, this is an insanely short stay when…

The Line of Demarcation and the Emergency Room

It’s funny how such a tiny, insignificant, dozen-times-a-day action can become a line of demarcation. The picking up of a phone. The pressing of an on button. Before I pressed it—as far as I knew—my sister Alina was alive. At the moment of pressing, my life split into two distinct epochs: Before the call and…

Love Bug & Lucky

At the time of this introduction, we’ve been struggling with the effects of acute flaccid myelitis (AFM) for just over nine months. August 21st, 2016 is a day that my family won’t soon forget. It’s the day that my perfectly healthy, happy, just-three-days-shy-of-two-years-old daughter would go down for a nap, business as usual, and wake…